Advocating for the Unseen: Namibia’s Rare Disease Community Speaks Out

https://soundcloud.com/the-namibian/rush-hour-interview-1mp3?si=99a555927cd14c95a2a3b5ddb377a2ce&utm_source=clipboard&utm_medium=text&utm_campaign=social_sharing

Bianca Özkan, founder and patient advocate for Namibia’s rare disease community, sheds light on the challenges faced by those living with rare conditions. With over 7,000 rare diseases worldwide, Namibia’s efforts to raise awareness, improve diagnoses, and provide support are critical. Tune in to discover how advocacy, neuro-linguistic programming, and upcoming initiatives are making a difference in the lives of man